Things are moving

OK, so here is what has happened since last I updated.....We were moved to the EMU (epilepsy monitoring unit) We moved up here yesterday. From what mom found out, a kid got moved out, and the one that was supposed to be moved in was, for some reason unable to get up here.....so we got the spot. We spoke with Dr Wheless (who we have been told by many that he is by far and away the bestest around. If you look up on the Internet, his name is attached to most epilepsy studies. And Jules and Kelly are very happy that he is an OU graduate.....) He ordered a SPECT test. Now I don't know much about this test, but what they do is have to order in these radioactive isotopes (they are not kept here because they do not have a very long life) so they were not even sure that they would be able to get this test run this week because they usually run them earlier in the week. So that was a blessing to get to do this so soon and not have to wait until next week.

They have to wait for Karlie to have a seizure and then they have a minute to get the dye injected into her body. Then they have up to 6 hours to the pictures of her brain taken. This is supposed to be just a stronger MRI. They had her lay perfectly still (they had to sedate her for this test also.) and then this machine went around her head and took pictures. They are supposed to do the same test tomorrow, but they don't have to wait for a seizure this time. This is so they can get a base line scan. However, Dr Wheless came in today and told us that it appeared that she had more seizures when she is sleeping (this would explain why when it's time for her to go to sleep, she says that she doesn't want to because it makes her seizures bad.) This isn't too bad right now, but in the long run, they can cause her to have learning disabilities. Right now Dr Wheless's plan was to try and just slow down her seizures when she sleeps so they can get the baseline scan tomorrow. So he said there were several ways to work on this but the easiest is to try and give her Valium and see if that slows down her seizures when she is sleeping. She just woke up from her nap and she is in such a good mood.

Right now we are waiting for Killian and Kelly to get here. We haven't seen them since Sunday. Wow do we miss them. We can't wait for them to get here. Karlie is getting a little restless lately. She has been in bed since Monday evening. She has been hooked up to EEG wires since Monday evening (with the exception of one day) She isn't really allowed to get up and walk around. She is really doing well considering all that. She has won over just about every nurse that has walked in the door. They think that she is the most adorable thing in the world (I'm sure they say that to all their patients, but it sure helps Karlie warm up to them a little better.)

OK, I think I've rambled enough here. Every time I get on here to type this I get another call or another nurse walks in to take vitals or to check on her. So if I repeat myself or ramble, I am sorry.

I also wanted to say to all our friends and family, thank you so much for all the calls and prayers. We appreciate all of them. We try our best to answer all the calls or return them as soon as we can. If we are a little slow, or we miss something we are very sorry. But feel free to call and check on us at any time. We don't mind it at all!!!

Thanks again! Love and kisses to everyone!!!!!