OK, so here it is......we made it to Memphis just fine (thanks to dad's GPS......which I will never ever leave home without ever again.....) W met up with my old salesman and his wife and they showed us where we would be taking Karlie to today (which ended up being the wrong place. Right, but wrong) any who, we made it to our appointment, Karlie was not really having a good day at all. Lots of seizures, and she didn't sleep well at all last night. Mom couldn't believe how restless she was. It's no wonder she was so tired. So, back to Dr Lynn. HE IS AWESOME!!!!!!!!He looked at Karlie and talked to us, and asked our concerns and within about 20 minutes he told us that he didn't know what we were there for (second opinion or as a new patient or what) but he wanted to get her admitted. He did not like at all, that she was on so much medication and was still having seizures. He did believe us that she was having too many to count. We basically told him that we told the family that we would be here as long as we needed to be. We brought extra clothes and we would be more than happy to stay as long as he wanted us to.
So we got admitted immediately. Withing 45 minutes we were up in a room, and within another hour we were hooked up to the EEG video monitor. Within another 45 minutes or so, Dr Lynn had been called and said she was having "sub clinical seizures" which means that to look at her you see nothing, but her brain is constantly flashing (for lack of a better word....but the seizures are like a constant lightning storm.) and that was why she was falling so much and just looked so drained because she was constantly having these seizures. And he told mom that he was very happy that we brought her to him when we did. They are a very aggressive hospital as far as getting her in and getting her seizures stopped. They ordered phenabarb (sp?) STAT for her, to calm the seizures. She was still showing the "drop" seizures on her eeg, but the other ones had stopped. She is currently passed out in the bed right now. We had a difficult time getting her to the bathroom earlier. Poor little girl was soooooo worn out and all the drugs, she was just drained!
So, thank you for all the prayers, we are here, and we are being very well taken care of. I can not begin to say how pleased we are with the care we are already receiving. Tomorrow we are having an MRI and the dr wants them to disect the right side of her brain on the pictures very thinly so they can try and determine where her seizures are coming from. Did I mention that we are very very happy with our decision to travel ab out 1200 miles round trip just for a dr's appointment????
So we will keep everyone updated on how things are. We are trying to take lots of pictures, I will figure out how to add them later.
Thanks for checking on us!
9 days
11 years ago
3 comments:
Yay! I'm so happy that ya'll are there and that you may be getting some answers. God is good and He'll take wonderful care of you guys.
Can't wait to hear more updates!
Love all three of you!!
Hey Amy, good to hear that you are getting some most deserved answers. We are all praying for a safe visit and trip back to Enid!!! Take care of yourselves.
My first post from yesterday doesnt show so I am trying this again.
It sounds like you are headed in the right direction and you feel good about your decision. That is great and I am praying that Dr. Lynn can get this in control and give you some more answers. remember what I told you before: If he brings you to it, He will bring you through it.
Please keep posting updates and know we are all thinking of you. Hug her tight so she can feel the love we are sending your way.
Love ya!
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