The surgeons have been called in......

OK, so we spoke with Dr Lynn today. He says that she is still having the constant seizures. He wasn't ready to start her on the new medication yet. He doesn't like to be pessimistic, however, he doesn't think that the medications are working (obviously yes.....)He wants to try it, but is pretty sure that it won't be will the cure all answer, so he wanted us to speak with the neurosurgeons. So, after the MRI, Dr Lynn came back in and told us that he had spoken with the neurosurgeon team and they were interested in her case. They reviewed the MRI and the took a quick look at the EEG, and came and talked to us. They mainly just asked us some questions (you know, the same questions we have been asked over and over again...is she developing normally, has she lost any skills, when did she walk, what do her seizures look like, which side does she look to when she has them, blah blah blah blah blah.....) and then told us that they were going to talk to their bosses and see if they thought that she was a good candidate for surgery. They said that she may not be (I'm hoping this is something they just tell everyone to not get their hopes up) anyway, they were going to go back and talk to Dr Boop and see what he thought and they would be back to talk to us tomorrow (Wednesday) If they feel she is a good candidate they will be running more tests on her. They figured that since we were here, they would do everything they could while we were here. This is by far the best place in the nation. They do about 4 brain surgeries a week. This is what they do......So we find out tomorrow if they are going to do more tests. We are looking at possibly doing a PET scan and a MEG scan. These are just better and better MRI's.

Have I mentioned how much I love this place???? Things have just fallen into place. And everyone here is sooooooo nice. We have just gotten the royal treatment. Everyone takes great care of us. They all have the cutest southern accents. And almost all of them are smiling all the time. But we have just been very very pleased with the love and care that all the nurses and Dr's have shown us here. We are in the most capable of hands here. We are just praying that these neurosurgeons are able to see what they need to see on the scans and that they are able to fix our precious baby girl.

Let me just say, that Karlie has been the best patient. She lets the Dr's and nurses look at her, she smiles at them, she talks to them. She breathes when they tell her too, she lets them look in her eyes and ears and list to her heart. She is doing awesome. The phenobarbital (sp?) is really making her loopy. She can't walk, she slurs her words, she has trouble eating I do not like her on it at all. I hope that they don't put her on it long term. It is awful. I hate seeing her on it.