OK, so we've been home from the hospital for a week and a half..... It's been a tough week and a half. Lots of ups and downs....... Sis said that she told the kids she had a "stwa wate er" put it. It is sooooo cute. She knows when she has bad seizures, and will tell you if she had a bad one, or if she is having lots of little teeny tiny ones. I usually know before I ask, but I ask just to clarify.
She's had some big ones since we got home. The Dr is not Really really concerned (he is a little) because he says that her brain is not as tired from the teeny tiny seizures so the big ones are able to come on through and present themselves. Last week we had some concerns because she was having an awful time walking. but Friday afternoon she just got better. Not sure how but it is a little better. Still not perfect, but again the Dr is not concerned because he says it is not going to be forever that she will have trouble walking. Needless to say, we would love to get the surgery done sooner if possible. I would gladly postpone turkey dinner at home for a week at the hospital betting my baby girl all better.... But apparently this is not in God's plan or in Dr. Wheless's plan either. Oh well. When the time comes, we will be ready.
On the up side, She is taking her medicine like a champ!!!! Before she was taking it in applesauce. When they gave them applesauce at daycare she would push her whole plate away. We offered her to try it in pudding, in frosting, in ice cream even.... but she would have none of that..... I think it was because she associated her medicine with applesauce and she hated that, and she didn't want to associate her medicine with ice cream or frosting and stop liking those things.... So the best thing we found to disguise it in now is the ready made cheese cake filling that you get by the rest of the cream cheese products. SHE LOVES IT!!!!!! She says "That is Scrumpdilly yumptious!!!!!!" And "That is soooooooooo tasty!!!!!" it is so cute. And she even feeds herself! I'm so excited. Not sure how long it will last, but enjoying it all the same!!!
Anyway, nothing special to update on really. Just didn't want to go a whole year without an update ;) Love to all!
9 days
11 years ago
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